Dominik!!!
I can't believe my baby boy is 1 already. It blows my mind that he is growing up.
Saturday, October 25, 2008
Wednesday, October 15, 2008
Corey Lynne Burton Rowley
Corey L. Burton Rowley
July 21, 1968 – October 13, 2008
July 21, 1968 – October 13, 2008
TREMONTON - Corey Rowley, a national leader in the disability rights movement lost her long battle with cancer much too soon on October 13, 2008, at age 40, surrounded by her family in Salt Lake City, UT.
Ms. Rowley was a highly successful progressive voice for change and her leadership had a significant impact on the lives and rights of 54 million Americans with disabilities.
Ms. Rowley served as the executive director of the Pennsylvania Statewide Independent Living Council and the Utah Statewide Independent Living Council. She chaired the Utah Legislative Coalition for People with Disabilities and served on the Board of Directors of the American Association of People with Disabilities (AAPD) and as Vice President and Chair of the Legislative and Advocacy Committee for the National Council on Independent Living (NCIL). She received the 2006 Justice for All award from AAPD and the 2007 Frank Harkin Memorial Award from NCIL for her leadership.
Growing up in Fielding, Utah, she graduated from Bear River High School. After successfully surviving leukemia during her pregnancy with her second daughter in 1991, Ms. Rowley took her personal experience with disability discrimination and her vast knowledge about public policy, and led many national initiatives to increase employment, improve access to healthcare, assistive technology, voting, independent living services and supports and to increase the implementation and enforcement of civil rights protections for people with disabilities. She was especially known for her work to increase the legislative impact of grassroots organizers, youth leadership development and for initiatives that led to the inclusion of the history of disability rights in public school curriculum.
In addition to her expertise in organizing, advocacy and public policy systems change, she loved history, politics and she was the life of any gathering she attended.
Ms. Rowley is survived by her mother, Gwen Burton, her daughters, Amber and Alex Rowley, her granddaughter, Bella Rowley and nine brothers and sisters, Janet Call, Joan Ann Gilbert, Val Burton, Gary Burton, Cindy Richins, James Burton, Melanie Evans, Charlene Kidman and Keri Burton as well as many nieces and nephews and a wide circle of friends in every state across the US. She was preceded in death by her father William Darrell Burton Jr. She will be deeply missed but the impact of her efforts to improve the lives of people with disabilities leaves a lasting legacy.
On-line condolences may be expressed at www.rogersandtaylor.com.
Ms. Rowley was a highly successful progressive voice for change and her leadership had a significant impact on the lives and rights of 54 million Americans with disabilities.
Ms. Rowley served as the executive director of the Pennsylvania Statewide Independent Living Council and the Utah Statewide Independent Living Council. She chaired the Utah Legislative Coalition for People with Disabilities and served on the Board of Directors of the American Association of People with Disabilities (AAPD) and as Vice President and Chair of the Legislative and Advocacy Committee for the National Council on Independent Living (NCIL). She received the 2006 Justice for All award from AAPD and the 2007 Frank Harkin Memorial Award from NCIL for her leadership.
Growing up in Fielding, Utah, she graduated from Bear River High School. After successfully surviving leukemia during her pregnancy with her second daughter in 1991, Ms. Rowley took her personal experience with disability discrimination and her vast knowledge about public policy, and led many national initiatives to increase employment, improve access to healthcare, assistive technology, voting, independent living services and supports and to increase the implementation and enforcement of civil rights protections for people with disabilities. She was especially known for her work to increase the legislative impact of grassroots organizers, youth leadership development and for initiatives that led to the inclusion of the history of disability rights in public school curriculum.
In addition to her expertise in organizing, advocacy and public policy systems change, she loved history, politics and she was the life of any gathering she attended.
Ms. Rowley is survived by her mother, Gwen Burton, her daughters, Amber and Alex Rowley, her granddaughter, Bella Rowley and nine brothers and sisters, Janet Call, Joan Ann Gilbert, Val Burton, Gary Burton, Cindy Richins, James Burton, Melanie Evans, Charlene Kidman and Keri Burton as well as many nieces and nephews and a wide circle of friends in every state across the US. She was preceded in death by her father William Darrell Burton Jr. She will be deeply missed but the impact of her efforts to improve the lives of people with disabilities leaves a lasting legacy.
On-line condolences may be expressed at www.rogersandtaylor.com.
Tuesday, October 14, 2008
Feeling Blah and Once Again Back in Utah
*I started this Tuesday morning. Some parts might not make much sense the way I wrote it but it's mostly for me*
I'm not sure how to start this post. I don't know if it is too soon or if it is okay to be blogging about what is going on. As my title says I'm back in Utah. I was in Colorado for one whole week before I came back this time. And luckily it doesn't have to do with Dominik. I am going to write this one for me. It is sad, so if you don't want sad today don't read any farther.
My Aunt Corey was diagnosed with leukemia 17 years ago when she was 23. She went into remission and has gone about her life. A year ago she got a bone infection and I guess it triggered the leukemia again. Four months ago she went back into remission and a week ago was put back in the hospital because it was back. This time it spread to her brain and there was nothing her doctors could do.
I talked to my mom yesterday afternoon (Monday) and she told me they weren't going to do the surgery to put a catheter in her to pump chemo drugs directly into her brain, they couldn't because her clotting factors were too low. When my Grandma, Corey's girls, and all of her brother's and sister's got there they turned off the machines.
Kevin got the rest of the day off work and he brought me and the kids to Utah. Aunt Corey died when we got to Price. In a way I'm glad she went fast, but at the same time I wish I could have been there. I feel like my mom needed me. In all of this I am most sad for Amber, Alex, Grandma, and my mom. She is having a really hard time with it. I don't know how to help or not to help.
I found out last night (Tuesday) the funeral is on Friday. My friend is going to take Cheltzi and Dominik overnight. I tried to explain to Cheltzi that Aunt Corey went to be with Heavenly Father because she died. She didn't understand and started crying because she thought Heavenly Father had died too. I don't know how to explain it to her so I thought it would be better for her to not be there. I don't think it is fair for her to have to understand right now.
**A few things that have gotten me through the last couple of days: the power of the priesthood (I had Kevin give me a blessing on Sunday because I felt like I needed one. Who knew Corey's Death was part of the reason I needed one?). Prayer. And Primary songs. Even if I can't remember all the words. I just realized that all of them started with a "p". Just so you know I didn't mean for that to happen.**
I'm not sure how to start this post. I don't know if it is too soon or if it is okay to be blogging about what is going on. As my title says I'm back in Utah. I was in Colorado for one whole week before I came back this time. And luckily it doesn't have to do with Dominik. I am going to write this one for me. It is sad, so if you don't want sad today don't read any farther.
My Aunt Corey was diagnosed with leukemia 17 years ago when she was 23. She went into remission and has gone about her life. A year ago she got a bone infection and I guess it triggered the leukemia again. Four months ago she went back into remission and a week ago was put back in the hospital because it was back. This time it spread to her brain and there was nothing her doctors could do.
I talked to my mom yesterday afternoon (Monday) and she told me they weren't going to do the surgery to put a catheter in her to pump chemo drugs directly into her brain, they couldn't because her clotting factors were too low. When my Grandma, Corey's girls, and all of her brother's and sister's got there they turned off the machines.
Kevin got the rest of the day off work and he brought me and the kids to Utah. Aunt Corey died when we got to Price. In a way I'm glad she went fast, but at the same time I wish I could have been there. I feel like my mom needed me. In all of this I am most sad for Amber, Alex, Grandma, and my mom. She is having a really hard time with it. I don't know how to help or not to help.
I found out last night (Tuesday) the funeral is on Friday. My friend is going to take Cheltzi and Dominik overnight. I tried to explain to Cheltzi that Aunt Corey went to be with Heavenly Father because she died. She didn't understand and started crying because she thought Heavenly Father had died too. I don't know how to explain it to her so I thought it would be better for her to not be there. I don't think it is fair for her to have to understand right now.
**A few things that have gotten me through the last couple of days: the power of the priesthood (I had Kevin give me a blessing on Sunday because I felt like I needed one. Who knew Corey's Death was part of the reason I needed one?). Prayer. And Primary songs. Even if I can't remember all the words. I just realized that all of them started with a "p". Just so you know I didn't mean for that to happen.**
Thursday, October 9, 2008
Fun Tag
I got this tag from my friend ,Nykki's, blog. Go to the fourth photo album folder and post the fourth picture in that folder:
Dominik at 9 months sleeping in his Jumperoo. I got the jumperoo out after the doctor told me Dominik's legs weren't developed like they were supposed to be. He likes the jumperoo a lot more now that he did before.
I tag Amelia, Jess, and Annika
Dominik at 9 months sleeping in his Jumperoo. I got the jumperoo out after the doctor told me Dominik's legs weren't developed like they were supposed to be. He likes the jumperoo a lot more now that he did before.
I tag Amelia, Jess, and Annika
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